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Tag Archives: pain management

A little whinge

My pain notices from different parts of my body are getting all scrambled.

I can no longer tell the difference between sinusitis, TMJ pain, and toothache. It’s taken me a week to work out that the gum around a back molar is extremely tender, especially around the tooth itself, and I have got a dental appointment for next Monday morning. (Friday morning at the moment.) Of course, if I could work out where the dratted pain is coming from, I’d have a better chance of getting an appointment for the right part of me and earlier, too.

Meh. Fibromyalgia and chronic pain disorder. Vile. Utterly horrible. Lest you think I’m really a whinger, I should add that I’m working full-time while dealing with this crap. Even if I weren’t, I am starting to think that really I deserve to be cared for and given some kindness rather than being expected to suck it up.

 
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Posted by on October 17, 2014 in Uncategorized

 

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Aaaaaand I’m back!

Yeah, it’s taken me 6 weeks to get off my tuchus and write another post.

Bronchitis kicked my butt. Then I was trying to get back and neck pain under control. Latest sweet thing: insomnia. I look like somebody put my eyes in with sooty fingers. All of me looks like a pink dumpling stuffed into unfashionable clothes (but with nice accessories, of course).

I feel I’ve done well to keep up looking neat and tidy, keep Miss Seven Year Old (aka the Princess) on time for school, fed and watered, and to look after the cat. Keeping papers in the house under control has been rather more difficult.

Thank goodness the cleaners come today. My back and arms get a break! Yay! And the cleaners change the bed linen also which is a great relief – one more time that I don’t have to stretch to stuff a doona into a clean doona cover, or fight sheets that won’t go on the mattress.

So what’s living with pain like? It’s different for each person. We might share some similarities, but how we respond and deal with pain and life at the same time will be according to each person’s resources.

If we’re short on resources (e.g. a partner who will share cooking and cleaning and tidying, access to medicine that works efficiently, etc.) then the level is Barely Coping some days. Other days it’s Damn I’m Marvellous Despite Feeling Like My Butt has been Kicked by a Mean Donkey.

I’m a bit over the “spoons” theory. It has been co-opted by people who have NO bloody idea of what it is like to live with chronic pain, nor the exhaustion and depression that can accompany it.

OK, grumble over. I’ve managed to get to work (yay!) for a section meeting (erk) and then will have singing later on today (yay!) tho I have been so busted up with insomnia that I don’t have all my sheet music ready (erk). Story of my life, darlings!

Speaking of which, when I’m tired and in pain, my speech becomes a mild version of word salad at worst. At best, I can’t manage people’s names and everyone gets called “darling”. To my embarrassment, I called my neurosurgeon darling last week. He didn’t seem displeased (thank goodness) but I’ll try harder to get his name right.

 
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Posted by on May 2, 2013 in Uncategorized

 

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Getting a haircut doesn’t hurt but an MRI can

But getting my hair washed in that Basin of Doom and Discomfort does. I go to that particular salon because I like the skills of the hairdressers and have always got nice cuts. In fact I followed that hairdresser from his previous salon.

The only drawback is having my hair washed prior to the cut. The seat at the basin can’t be moved. Consequently I end up with my neck hurting and me fidgeting, and then my stupid stupid neck nerve pain cuts in. (That would be an additional motive for not getting my hair dyed either – more time in the Basin of Doom.)

Anyway, I have taken my Lyrica capsules diligently, took one more this morning as I usually do, and crikey, the pain from my neck and left arm is still quite annoying. My left hip and ankle ache and ache. And no particular painkillers help for that stuff given that most of it is neuropathic pain.

And so help me, if one more person recommends chiropractors or herbs or acupuncture, I will scream my head off, despite how rude it would appear. I have tried it all. Seriously. My GP is not averse to trying alternative therapies even though it hurts my purse. 🙂

I got an MRI of my neck a couple of weekends ago. I didn’t know that nuclear scanning places opened on the weekend but I think it’s the only way they can get through all their patients. The MRI was not pleasant at all, to put it mildly. I had to lie still in a metal tube and the non-existent padding underneath caused back spasms. Then the neck and arm spasms started. I could hardly contain myself. There may have been tears and I may have been holding my breath at different points because the pain was excruciating, ending with my pointer and middle fingers having pins and needles and going numb. Each time. You can see why I have been eager to find out why this darn pain happens.

Net result, it’s not all in my head. (You have no idea how many times people with chronic pain hear that.) I have various problems with discs and spurs and so on. Now what do I do? My consultant forgot to write me a referral to a neurosurgeon so I have to chase that up.

I should add now that the haircut looks sweet. DD approves, though she doesn’t approve the creeping skunk line of where I haven’t been colouring my hair. DD also approves of the adorable little shopping precinct where the hairdresser is, and was thrilled with a gluten free, vegan brownie. I would have taken a photo but she was too fast!

Additionally, here’s a pain scale to give you an idea of what can be happening with a fairly silent chronic pain sufferer. We’re not trying to make life difficult, we want to participate in life and fun activities but honestly, sometimes the pain drives us nuts. Hyperbole and a Half http://hyperboleandahalf.blogspot.com.au/ really knows how.

Pain Scale

 
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Posted by on March 8, 2013 in Uncategorized

 

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